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TW: Mental health, suicide
January is Thyroid Awareness Month, a month dedicated to talking about thyroid disease.
This awareness event gives us the chance to raise awareness around the different types of thyroid conditions, the symptoms, the importance of diagnosis and optimised treatment, and also the many issues we face as thyroid patients.
Contrary to popular belief, thyroid conditions are not always as easy to treat. Many of us are so frustrated to hear “Just take this pill everyday and you’ll be fine”. We’re not fine.
Many people with thyroid conditions (and I focus mainly on hypothyroidism and Hashimoto’s, as these are what I live with too and advocate for personally) do not get the treatment or testing they need in order to feel better.
This means that they live day-to-day with ongoing symptoms and complaints affecting their quality of life and mental health and wellbeing.
The effects of this can be shocking.
- Mental health difficulties
- Struggling to remain in employment
- The breakdown of relationships
I’ve also heard from countless people who became suicidal or had family members who tragically acted on these feelings due to an undiagnosed or inadequately treated thyroid condition.
So it’s no surprise that we have a lot of progress to make in how people with thyroid disease are treated.
Did You Know:
- The World Health Organization estimates that 750 million people in the world have some form of thyroid disease
- Which includes 1 in 20 people in the UK, says the British Thyroid Foundation
- Though The ATA say that as many as 60% are undiagnosed
- And around 8 times more women are affected than men, with key triggers being puberty, pregnancy and the menopause
Symptoms of thyroid conditions are far-reaching, as thyroid hormone is needed for every cell and function in the body.
Symptoms of Hypothyroidism and Hashimoto’s Include:
- Sensitivity to cold/heat
- Weight gain and inability to lose weight
- Constipation and/or wind often
- Slow movements, speech and thoughts
- Itchy and/or sore scalp
- Muscle aches, pains and weakness
- Muscle cramps
- Poor appetite
- Dry and tight feeling skin
- Brittle hair and nails
- Loss of libido (sex drive)
- Pain, numbness
- Numbness in limbs
- Irregular periods or heavy periods
- Brain fog/confusion/memory problems
- Hoarse voice
- A puffy-looking face
- Thinned or partly missing eyebrows
- A slow heart rate or one that increases more so than a healthy person’s, after physical activity (e.g. after walking up the stairs or emptying the washing machine)
- Hearing loss
- Poor stamina
- Feeling weak
- The need to nap more than others
- Long recovery period after any activity
- Arms feeling like dead weights after activity
- Inability to exercise, or withstand certain exercises
- Diagnosis of Chronic Fatigue Syndrome
- Being overly emotional
- Poor circulation
- High or rising cholesterol
- Acid reflux
- Hair loss
- Easy bruising
- Swollen legs that impede walking
- Joint stiffness and pain
- Fertility issues
Symptoms of Hyperthyroidism and Graves’ Disease Include:
- Increased sweating
- Oversensitivity to heat
- Increased appetite
- Weight loss
- Dry, thin skin
- Hair loss
- Change in sex drive
- Larger eyes
- Mood changes
- Dry or gritty eyes
- Double vision
- Weak, less define muscles
- Aches and pains
- Changes to menstrual cycle
- Infertility or problems conceiving
Could you, a friend or family member have a thyroid condition?
If you feel it could be possible that you have a thyroid condition, make an appointment with your doctor and ask them to run a full thyroid panel.
Your doctor may want to just run the TSH test first, but it is important to know that this isn’t entirely accurate on its own and the other components of the panel also need checking, especially if TSH comes back ‘normal’.
A Full Panel Includes:
- Free T3
- Free T3
- Thyroid Peroxidase Antibodies
- Thyroglobulin Antibodies
If your doctor will not test you for a thyroid condition but you believe you may have one, or if they won’t run all the tests you need, you could also explore ordering your own from online lab services. These are accurate and simple to use.
Diagnosed? Get The Right Treatment For You
It is also important to note that having Hashimoto’s can cause results to move up and down, therefore, you may see moving results. You may also be told that you ‘only have a borderline’ thyroid issue, but if you’re feeling very unwell, a trial of treatment can be given to see if it helps.
Friends and family of those with hypothyroidism should know that whilst a good quality of life can be achieved with a thyroid condition, some go on to live a forever-altered life. It can be classed as a disability. See my category for those who know someone with a thyroid condition here, and my book for our friends and family here.
For many thyroid patients, they still live with symptoms and effects of their thyroid condition, despite being on medication for it, so delving deeper into why is something you can do this month. We can live a good quality life with hypothyroidism.
We can also be aware of what results we are looking for and what other things (besides taking medication) can help us in managing our thyroid condition.
Will you be taking part in raising awareness this January?
If you’ve just been diagnosed, check out these common FAQ’s and answers:
- What is hypothyroidism?
- What are the thyroid medication options?
- Can Hypothyroidism be cured?
- How long will it take me to feel well again?
- What is Hashimoto’s?
- Why is weight gain a common symptom?
- What other conditions can hypothyroidism come hand in hand with?
- What’s wrong with my doctor testing TSH alone?
- Are there any books I can read?
- Are there any support groups I can join?
- What could any enlargement or abnormalities mean?
You can click on the hyperlinks in the above post to learn more and see references to information given.