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Originally published on 10th September 2018 Last updated on 10th September 2020
TW: Mental Health, Depression, Suicidal Thoughts
When I was in the first few months of my hypothyroidism diagnosis, I was suicidal.
My quality of life was so poor at twenty-one years old, that I couldn’t bear the daily pain (mental and physical pain) that I woke up with every morning. I just wanted it to end.
The 10th September is known as World Suicide Prevention Day, a day dedicated to the prevention of suicide and raising awareness around the subject of mental health. If you know someone who may be struggling to cope right now, today is the perfect opportunity to open the discussion on mental health.
More than 800,000 people across the world take their lives each and every year, but reaching out to those who are feeling suicidal and struggling with their mental health can save lives. Although I’m naturally quite a positive-minded and motivated individual, I still needed the support and guidance of those around me each time I’ve reached a mental health crisis in my life.
Those living with chronic health conditions are at an increased risk of also living with mental health conditions, due to the effects these conditions have on altering our lives but also altering chemicals and hormones within the body (and brain more specifically).
Many studies also conclude a link between thyroid levels and mental health. In fact, suicidal patients have been found to have a higher incidence of thyroid disorders, with lower Free T3 levels than non-suicidal patients. 
Living with thyroid conditions such as hypothyroidism and Hashimoto’s can be very difficult. Whereas some patients do just fine on standard thyroid medication, many do not, and it leaves them in a limbo state of society expecting them to function as well as everyone else, whilst their life starts to crumble and deteriorate around them as they try to keep up. Physically, the fatigue of hypothyroidism can be overwhelming, along with muscle pain and the many other symptoms, but mentally, thyroid patients can really struggle here, too.
I felt incredibly alone after standard thyroid medication failed to help me. I talk about this in great deal in my book Be Your Own Thyroid Advocate. The longer I was on Levothyroxine and the longer doctors declared my test results to be ‘normal’, I became steadily more unwell. Collecting more and more physical symptoms of hypothyroidism each week, my mental health was also taking a battering and every aspect of my life was falling apart from my inability to keep up.
I couldn’t keep myself together anymore, crying everywhere and anywhere at everything and anything. I was angry and frustrated with no one being able to give me answers as to why I still felt so physically ill, but I also felt numb and hopeless a lot of the time. I felt as if I was sat in a well, a well so deep that when I looked up, the sky was so far away it was tiny. And it felt like I would never get out. It felt like I was only ever going to get worse. Deeper and deeper in to this dark well.
With doctors telling me that my physical symptoms were ‘all in my head‘ and refusing to help me with my thyroid condition any further, I reached a point of being suicidal. I was desperate to end the pain. I was a twenty-one year old who needed her partner to carry her up the stairs.
I was fed up of my work life being so affected because I often missed multiple days a week of work, being bed-bound from the intense fatigue so heavy that even when I was awake, I felt as if I was asleep. And I was fed up of being alone with no one interested in helping me recover my health and life. I felt as if I was dying physically and mentally I was getting closer to giving up, too.
With the help of my now husband, I eventually started to recover my health when we moved me on to a better thyroid medication and started doing a lot of research ourselves, implementing changes, more comprehensive testing and even seeking out a private, functional medicine practitioner. But many thyroid patients are still left suicidal and struggling with their mental health every day by medical professionals who let them down in treating their thyroid condition adequately.
I dread to think how many may have even acted on these feelings, when they were in part suicidal due to a missed thyroid condition or inadequately treated one.
Thyroid patient Jacqueline Falkowski sadly died by suicide in 2015, after twenty-six years of being misdiagnosed and improperly treated for her hypothyroidism.
She heartbreakingly shared in her suicide note:
“I have had an enormous uphill battle trying to get doctors to believe me and take my symptoms seriously. My GP was adamant that my thyroid was fine and my symptoms were all in my head… I had anxiety because he didn’t believe my symptoms were real – he persistently stonewalled me – and meanwhile, my hypothyroidism symptoms were becoming debilitating and intolerable.” 
In thyroid patients of all ages, many of them may be labeled with psychiatric issues such as depression, when they are actually due to hormonal insufficiencies such as adrenal fatigue or hypothyroidism. In one study, it was concluded that by correcting the underlying hormonal imbalance, many patients’ mental health improved, with some patients having a total reversal of psychiatric symptoms. 
The truth is, many thyroid patients are under treated still and much of mainstream medicine lets them down. Outdated, huge ranges for test results and doctors not even testing a full thyroid panel, leaves their thyroid levels below optimal. And we know that most of us find we feel best with optimal levels.
Often, T4-only medication (such as Synthroid and Levothyroxine) raise Free T4 levels but due to conversion issues, don’t raise Free T3 levels in the same way. And T3 is a major link between hypothyroidism and mental health conditions.
This is because T3 has an important role in the health and optimal functioning of your brain, including: your cognitive function, ability to concentrate, mood, memory and attention span and emotions and ability to cope with life’s stresses. T3 interacts with brain receptors and makes the brain more sensitive to chemicals such as Serotonin and Norepinephrine, which affects your alertness, memory, mood and emotion.
Let’s not forget Hashimoto’s, either.
Hashimoto’s, prevalent in about 90% of us with hypothyroidism, is reported to cause swings of TSH, with hyper and hypo symptoms to match. 
Hyperthyroid symptoms can include hyperactivity, anxiety, irritability and disturbed sleep, whilst hypothyroidism often causes fatigue and depression. Do those swinging symptoms remind you of anything? Bipolar Disorder perhaps?
Also known as manic depression, it could well be suggested that Bipolar diagnosis’ are actually masking Hashimoto’s cases, where patients swing between hypo and hyper symptoms, as the thyroid is attacked and destroyed, and thyroid hormone is released into the bloodstream in waves.
The 2002 study: “High Rate of Autoimmune Thyroiditis in Bipolar Disorder: Lack of Association with Lithium Exposure”, found that Hashimoto’s antibodies were more prevalent in a sample of outpatients with bipolar disorder (28%), in comparison to a control group (3-18%). 
However, what complicates things is that bipolar patients are often treated with Lithium, a drug well-recognised to cause hypothyroidism and trigger Hashimoto’s. So was the thyroid condition there first, or did the lithium cause it?
I’ve never been one to sit quietly when it comes to discussing thyroid conditions and mental health, so on World Suicide Prevention Day, I had to share my thoughts and concerns for others out there with a similar story to mine. If you’re struggling with your mental health, please ensure a full thyroid panel is tested, especially if you feel no better on standard t4-only thyroid medication. Explore other options. Suicide should not be an option for a condition that can be managed.
Embracing being your own thyroid advocate and taking your health back in to your own hands is hugely beneficial to every thyroid patient. And changing thyroid medication could well save your life, like it did mine. I know I wouldn’t still be here had I not addressed that Levothyroxine was leaving me under-treated and suicidal.
Have an experience to share? Feel free to add it in the comments section.
You can click on the hyperlinks in the above post to learn more and see references to information given.
 http://www.scielo.br/scielo.php?script=sci_arttext& pid=S0101-60832018000100012
The book Be Your Own Thyroid Advocate: When You’re Sick and Tired of Being Sick and Tired, which covers how Rachel went from being suicidally depressed with an under-treated thyroid condition, to finally thriving in life again and coming out the other side.
Rachel Hill is the highly ranked and award-winning thyroid patient advocate, writer, blogger, speaker and author behind The Invisible Hypothyroidism. She has two books: ‘Be Your Own Thyroid Advocate‘ and ‘You, Me and Hypothyroidism‘. Her thyroid advocacy work includes authoring books, writing articles, blogging and speaking on podcasts. Rachel has worked with The National Academy of Hypothyroidism, BBC, The Mighty, Yahoo, MSN, ThyroidChange and more. She is well-recognised as a useful contributor to the thyroid community and has received eight 2020 WEGO Health Award Nominations.