50 Things Only People with Hypothyroidism Tend to Understand

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Here are a whopping 50 things that I feel only people with hypothyroidism tend to fully understand!

  1. Always being cold. Or on the odd occasion, having a hot flush. Then resuming to being cold again.
  2. The scariness of your hair falling out.
  3. Gaining weight even though you’re eating all the right food in the right portions.
  4. Being unable to lose weight even though you’re trying everything you can.
  5. Getting a decent amount of sleep, but still waking up more tired than the night before.
  6. Having brittle hair and nails.
  7. When even the simplest of questions are impossible to answer because you have thyroid brain fog.
  8. When your thyroid brain fog makes you do silly things. Like putting the dirty laundry in the bin instead of the washing machine, or mixing up words and talking a load of gobbledegook.
  9. When nothing helps your dry and tight feeling skin.
  10. Doctors refusing to give us the medication and testing that we need to feel well.  Surely that’s not right?
  11. Friends, family and co-workers thinking we’re lazy, unproductive or ‘slow’ in what we do. Little do they know about all the hypothyroidism symptoms.
  12. Your body feeling like you have the worst flu ever, with achy muscles and stiff and painful joints.
  13. Having a croaky voice on particularly bad thyroid days.
  14. That mental illnesses and other conditions such as depression, anxiety and insomnia often come hand in hand with hypothyroidism, with most patients having at least one mental health condition.
  15. Your menstrual cycle being irregular and sometimes a lot more heavy and painful.
  16. When thyroid medication is needed for life.
  17. That just because we’re on thyroid medication, it doesn’t mean we feel better. A lot of patients aren’t on the right type of medication for them. There are a few different types but most doctors only consider one of them and it doesn’t work for all.
  18. That you often have no appetite.
  19. Being tired is much more than anyone else understands.
  20. You love your bed more than anyone will ever know.
  21. Your life tends to revolve around sleep and energy levels.
  22. When people tell you ‘you just need to get enough sleep’ or ‘you just need to eat healthy’, in a bid to help you, but little do they know… We wish it was that simple!
  23. When you have to cancel on plans with friends, and they think you’re being a cop-out, but you can’t even lift yourself off the sofa as your body feels like weighs a million tonnes.
  24. When you’re one of the many thyroid patients who also have Hashimoto’s, so you go gluten-free to help your symptoms, but people don’t understand why you’re ‘awkward’ when eating out. They say “Just have gluten this one time, it won’t harm!” Yes, yes it will.
  25. When changing to regular clothes from your PJs means you’re having a good day.
  26. When doctors won’t help you and insist that ‘everything is in your head’.
  27. When you’re part of an online forum or support group who are much more help than any doctor you’ve tried or most people around you.
  28. It hurts when no one understands that hypothyroidism is a life-changing, lifelong condition.
  29. That a lot of us turn to self-medicating or going private in order to have any chance of getting better.(I had to go private to get the right medication.)
  30. We have to learn to examine our own necks for abnormalities.
  31. Having hypothyroidism makes us more prone to other autoimmune conditions, getting ill more often, and especially ‘adrenal fatigue.
  32. We rattle because we have to take so many pills, tablets, supplements etc.
  33. Even many endocrinologists, thyroid specialists, aren’t much more helpful than regular doctors.
  34. Some of our closest friends are those from online thyroid forums or support groups.
  35. Hypothyroidism can occur in men too. It’s a lower percentage, but still occurs.
  36. Doctors tend to send us away with a prescription, without telling us much about the actual condition.
  37. Trying to run a family and maintain a social life, as well as work and complete day-to-day tasks can feel nigh on impossible.
  38. We just want people to listen and try to understand what we go through and have to put up with.
  39. Putting on loads of layers often results in us still feeling cold.
  40. Someone asking how we’re doing often means the world to us.
  41. That no amount of make up hides the horrendous bags under our eyes.
  42. It’s not our fault we have hypothyroidism.
  43. Keeping up a job is sometimes very difficult.
  44. We can worry about passing the condition on to our children.
  45. A ‘lazy day’ is our idea of heaven.
  46. We tend to forget what ‘normal’ feels like.
  47. We’re prone to vitamin deficiencies such as iron, Vitamin B and D.
  48. Sometimes we just need to rant about the the frustration of having the condition.
  49. Feeling fifty years older than you actually are, due to the symptoms of hypothyroidism.
  50. Feeling sick and tired of feeling sick and tired.

Would you add anything else to this list?

Please remember that if you’re a thyroid patient living with poor mental health or lingering physical symptoms, that you don’t have to live this way. To address why you may still be feeling unwell (often despite being on thyroid medication too), please see this article and go through each suggestion, putting your thyroid jigsaw back together.

Rachel Thinking as She Looks Out to a Lake

There is also an online thyroid course which you can complete from your own home and computer. Freedom From Thyroid Fatigue helps you tackle low energy with a personalised approach. 

Be Your Own Thyroid Advocate Book CoverSee also:

The book Be Your Own Thyroid Advocate: When You’re Sick and Tired of Being Sick and Tiredwhich explains how I got my own life back on track after being struck down with hypothyroidism. You don’t have to live a poor quality of life.

You can click on the hyperlinks in the above post to learn more and see references to information given.

If you found this article beneficial, please take a moment to share it so we can help others get better with hypothyroidism and Hashimoto's, whilst also raising awareness. "Be Your Own Thyroid Advocate."

Written by Rachel, The Invisible Hypothyroidism

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5 thoughts on “50 Things Only People with Hypothyroidism Tend to Understand

  1. The croaky voice was interesting – now I understand why my voice gets croaky. Feeling older than I am – yep, me too. People tell me I dont look my age, we,, thats nice, but I FEEL at least 10 years older!! Really great article – thank you so much.

  2. OMGOSH this is my life and I have a lot of people who just don’t understand how my life is, I wish it was more out there for people to realise we do suffer in silence.

  3. My husband & our children, my sister had been telling me that I act like I’m an old woman. I didn’t know that was an actual symptom. That made me cry.
    Now, I’ll be able to show them & tell them that they obviously need to knock it off.

  4. I was on a thyroid compound for 20 years and never had a problem. About 1 year ago I can’t get the compound. Nothing has been right since.

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