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When it comes to having Hypothyroidism, there are both some important do’s and don’ts for achieving wellness and reaching a point of being in good health with it.
Whereas some thyroid patients do just fine on the standard T4-only thyroid medication and seem to require no further interventions or adjustments, many also do not do as well, and for these patients, learning what the key things they should and shouldn’t be doing is crucial to their recovery back to a good quality of life.
Don’t: Settle for Inadequate Treatment
Do: Consider Other Options if The First One Doesn’t Work
When it comes to having hypothyroidism, the way in which patients are often treated for it is less than ideal. If you’re on T4-only medication such as Synthroid or Levothyroxine and still feel unwell, then it’s well worth knowing that it isn’t in your head. In fact, thousands of people worldwide still have hypothyroidism symptoms on these standard medications. That’s why we’re reading and writing these very articles!
The main reason why so many don’t respond well to T4-only preparations is due to a conversion issue.
The thyroid gland produces five hormones, T1, T2, T3, T4 and Calcitonin. T4-only medications Synthroid and Levothyroxine (among other names) contain just T4. But as this is the storage thyroid hormone, it needs converting in to T3 to be of any real use. The people who struggle to adequately convert that T4 to the active T3 tend to do better on another medication that includes T3 as well as T4.
Therefore, if you’re still feeling unwell on T4-only medication, please explore T3 containing medication such as synthetic T3 and Natural Desiccated Thyroid. Changing to these medications are often the intervention that shows the biggest improvements to combatting symptoms.
unfortunately, I am one of the thyroid patients who didn’t do well on Levothyroxine but found that Armour, a brand of NDT, is working much better.
Don’t: Ignore Your Thyroid Tests
Do: Pay Attention To Them
First of all, ensuring that you are having a full thyroid panel tested and not just TSH alone (which is inaccurate without the other components of a thyroid panel), is a big step. Many people stay under-treated due to the full tests not being ran and thus providing a less than accurate picture of what’s going on. If your doctor won’t run a full thyroid panel, do know that you can order your own online.
You should also always be obtaining a print out of your test results too. Keep a record of your medical history and notes at home so you can refer back to them whenever you need, so that you can see the full picture of your thyroid health and refer back to them at any time.
This doesn’t just go for thyroid tests either, but vitamin tests, adrenal stress tests, examinations and any others are good to keep a record of when exploring and maintaining your overall health.
Many thyroid patients benefit from being more involved in their healthcare and treatment and this involves knowing what is being tested but also understanding what your test results mean. Being able to see where they fall and understanding what that means can help you understand if you’re being optimally treated. For example, aiming for optimal levels as opposed to just being ‘in range’ can make a huge difference.
3. Other Components
Don’t: Think It’s Just Your Thyroid
Do: Explore The Other Pieces of The Puzzle
Where a lot of thyroid patients and doctors go wrong is by assuming that the only thing they need to address is the thyroid gland. In fact, the contrary is true. I always describe treating hypothyroidism as like piecing a jigsaw puzzle back together.
There’s often many individual pieces and putting each one back in place gets you further to completing the journey.
As well as addressing low thyroid hormone levels, attention should also be paid to other factors that often coexist and contribute to the poor health of those with hypothyroidism. Other aspects of your health to consider when getting your life back on track with thyroid disease include: adrenal fatigue/dysfunction, oestrogen dominance, gut health, diet and food sensitivities, stress management, sleep routines, exercise and more.
Don’t: Stay With The Wrong Doctor
Do: Find One Who Will Drive Your Health Forward
If your doctor is dismissive, lacks understanding or sensitivity to what you’re saying, then they won’t be beneficial in your journey to getting on top of your thyroid health.
I’ve heard from countless thyroid patients who have been told that their symptoms are “all in their heads”, that they’re hypochondriacs or attention seekers. Doctors who also dismiss your requests to explore other treatment options if one medication isn’t working well, should also be avoided as they’re not helping you to get better, but instead hindering your recovery.
Many thyroid patients find the best success with functional and holistic doctors due to a wider range of medications being more readily available and doctors being more knowledgeable in how to use them effectively, but also for treating the patient as a whole, rather than lots of separate systems.
Doctors who give you ‘band-aid’ medications, for example thyroid medication for your hypothyroidism, pain medication for muscle aches as a result of the hypothyroidism, antidepressants for the low mood as a result of the hypothyroidism… are also stopping you from addressing your health properly. (Not that there is anything wrong with people taking antidepressants if they need them.)
Instead of covering up each symptom of hypothyroidism with a different medication, a doctor should be aiming to address the root cause of these symptoms adequately in the first place, so that growing list of prescriptions isn’t needed.
Don’t: Lose Hope
Do: Remember That You Can Be Well Again
Perhaps the most important ‘Don’t’ is to never lose hope of returning back to good health with hypothyroidism. Whilst it’s true that it can take a while to get there, with the need to address the whole endocrine system and then often gut health and other areas as well, please remember that it is possible and worth it in the end.
I have lost hope a few times on my thyroid journey and presumed myself doomed to a life of worsening health, struggles to remain in work and horrendous mental health. But as I started to embrace being my own thyroid advocate and implementing many of the things I mention in this article, I realised that having a good quality of life where my thyroid condition wasn’t a constant thought, wasn’t out of reach. I just needed to remain hopeful, become an active participant in my own healthcare and educate myself.
Get reading studies, articles, blogs, books, listening to podcasts and speaking to other thyroid patients. Support groups can also provide you with a lot of information as they are known for patients empowering other patients, giving out useful sources of information and helping you realise that you’re not alone in this battle.
What do’s or don’ts would you add to this list?
You can click on the hyperlinks in the above post to learn more and see references to information given.
The book Be Your Own Thyroid Advocate: When You’re Sick and Tired of Being Sick and Tired, which builds on this article in detail. Reclaim your thyroid healthy life.
There is also an online thyroid course which you can complete from your own home and computer. Freedom From Thyroid Fatigue helps you tackle low energy with a personalised approach.
Rachel Hill is the highly ranked and multi-award winning thyroid patient advocate, writer, speaker and author behind The Invisible Hypothyroidism. Her thyroid advocacy work includes authoring books, writing articles, blogging and speaking on podcasts, as well as being a board member for The American College of Thyroidology and The WEGO Health Patient Leader Advisory Board. Rachel has worked with The National Academy of Hypothyroidism, The BBC, The Mighty, Yahoo, MSN, ThyroidChange and many more. She is well-recognised as a useful contributor to the thyroid community and has received multiple awards and recognitions for her work and dedication. She has authored two books: ‘Be Your Own Thyroid Advocate‘ and ‘You, Me and Hypothyroidism‘. Rachel is British, but advocates for thyroid patients on a global scale.