Originally published on 5th December 2017 Last updated on 20th August 2019
The Invisible Hypothyroidism isn’t the only source of information out there, for thyroid patients. Heck, before I started this website I read up about my new diagnosis and what it meant, on what must have been hundreds of websites and articles.
However, filtering websites can be daunting, so I’ve summed up a list of places below. Those mentioned below are not necessarily endorsed by myself and I cannot control the content or opinions expressed on external websites. They are listed for you to explore.
In alphabetical order:
Amy Myers, MD is a two-time New York Times best-selling author and an internationally acclaimed functional medicine practitioner who specialises in empowering those with autoimmune, thyroid, and digestive issues to take back their health and reverse their condition. Her books are listed below.
The website Autoimmune Mom was born out of a frustration from a lack of online information about autoimmune conditions. Believing there must be a way to develop content that dug into current research and examined deeper questions, the site began to take shape. The website answers many frequently asked questions when you live with an autoimmune disease such as Hashimoto’s.
Butterfly Thyroid Cancer Trust is the first national charity in the UK dedicated solely to the support of patients with Thyroid Cancer. The offer dedicated online help to thyroid cancer patients, a ‘buddy’ to help you through treatment and an online forum.
Chris Kresser, M.S., L.Ac is a functional and integrative medicine practitioner, writer and author. His website is one of the top 25 natural health sites in the world and has an endless amount of detailed articles. His book is linked to below.
Datis Kharrazian, PhD, DHSc, DC, MS, MMSc, FACN, is a clinical research scientist, academic professor, and a functional medicine health care provider. He has a whole wealth of information on his website and is well-renowned for his work in Hashimoto’s. His book, is hugely popular.
Dr. Brighten is a women’s health expert, coining the term ‘Post Birth Control Syndrome’, and sees many thyroid patients in her day to day practise in clinic. Her articles and book are down to Earth, relatable and refreshing. She’s a wealth of information on women’s health and hormones.
Dr. Nikolas Hedberg is a respected and praised functional medicine practitioner and chiropractor. He has lots of great articles, blogs and even podcasts on his website.
Sara Gottfried is a board-certified gynaecologist, and author of three New York Times bestselling books. She covers all things hormones, including thyroid, adrenal and sex hormones.
Hashimoto’s 411’s goal is to educate and empower Hashimoto’s patients to treat the underlying autoimmune condition and thereby reduce symptoms and prevent further decline in health. They have a forum that Hashimoto’s patients can use for support, as well.
The Holtorf Medical Group specialises in optimising quality of life and being medical detectives to uncover the underlying cause of symptoms, rather than just prescribing medications to cover-up the symptoms. Therefore, their website showcases this level of knowledge with scientifically backed up articles which are shared often across social media sites.
Dana at Hypothyroid Mom went through a traumatic experience because doctors failed to monitor her hypothyroidism correctly, resulting in her loss of an unborn child. So she began blogging and advocating in pursuit of changing thyroid treatment and subsequently, lives. She covers all sorts in the articles on her site, taking a functional medicine viewpoint, often featuring doctors as content providers. Hypothyroid Mom wrote a book with fellow thyroid patient advocate Mary Shomon.
This site contains lots of articles about the science and biology behind hypothyroidism and various issues with T4-only medication and things that conventional medicine practitioners may be missing. Extracts from this site are credible enough to present to your doctor in confidence.
Mary Shomon has a very popular Facebook page and writes for various websites. Once a hyperthyroidism patient who had her thyroid gland ablated, she’s an advocate for both hypothyroidism and hyperthyroidism patients. Mary Shomon has a few very popular books:
Miss Lizzy shares her personal story of hypothyroidism and what has helped her recover her health.
Paul Robinson at Recovering with T3 created the Circadian T3 Method (CT3M), for those who do not feel better on T4-only medication such as Levothyroxine. His work can be found on his website Recovering with T3, as well as in his three books:
Sick to Death is a video/film project by Maggie Hadleigh-West; a film exposing the corruption in the medical world, surrounding thyroid disease. Maggie works tirelessly, seeking to improve the medical establishment’s response to thyroid disease. Sick to Death is a brazen call-to-action film, which seeks to understand and change this disturbing medical reality.
STTM focus mainly on the power of Natural Desiccated Thyroid for the treatment of hypothyroidism and is built on patient experiences, encouraging thyroid patients to share their stories and learn from one another. STTM’s book is hugely popular.
The Butterfly Effect Blog is a health and wellness website dedicated to providing research and patient-to-patient advice on healing and dealing with chronic illness. It is created by Victoria, who has Hashimoto’s. She created The Butterfly Effect to spread awareness of autoimmune-related, chronic health conditions, providing a patient perspective on health, natural medicine, and more.
The NAH is a non-profit, multidisciplinary medical society dedicated to the dissemination of new information on the diagnosis and treatment of hypothyroidism, mainly in the USA. It is run by a group of thyroidologists, headed by Kent Holtorf M.D., David Brownstein, M.D., Denis Wilson, M.D., Michael Freidman, N.D., and Mary Shomon. Articles and blogs on all things thyroid are written in an easy to understand manner.
ThyroidChange is an organisation that seeks to improve the diagnosis and treatment of thyroid conditions. They are a grass-roots movement for better thyroid care. Thyroid Change have a website full of useful articles written by doctors and other thyroid advocates.
Dr. Zana Carver is a college professor who specialises in teaching Human Anatomy and Physiology. She has research experience in exposure science and pharmacokinetics (how chemicals move within the body). She also happens to be a thyroid cancer survivor who has had no choice but to learn about all the ways in which thyroid hormone replacement can never truly replace the natural hormonal balance and regulation.
Zana has been disappointed with the long time it takes for good research to be translated into medical “standards of care.” It is, therefore, her mission to find the most helpful and relevant research. It is also Dr. Carver’s mission to translate and contextualise this research for students, thyroid patients, and the general public.
She also has a book:
Although not as active as other thyroid advocates and writers, Thyroid Mom does have some very thought provoking blogs on congenital hypothyroidism (when it is present at birth) and the effects of this on the child and parents.
Thyroid Nation focuses on uplifting readers with positive articles and stories that present information learnt from personal experiences. A lot of the articles are also based around lifestyle changes and factors that can greatly improve thyroid health. There is also a radio show/podcast.
Another UK charity, TPA is an independent organisation that also work towards establishing better diagnosis and treatment of hypothyroidism in patients. Dr Barry Durrant-Peatfield is a Trustee and Dr Kent Holtorf a Medical Advisor. There are countless hugely informative articles written by various doctors and healthcare professionals on the site, with information for both patients and doctors. Dr Durrant-Peatfield’s book is below.
Izabella Wentz is a well respected pharmacist who also developed Hashimoto’s and hypothyroidism. Through her own determination and knowledge as a medical professional, she has managed to reverse her autoimmune condition by implementing several lifestyle and diet changes. She has a very large following on Facebook especially and her books are loved by many patients.
Thyroid Sexy is an online community created and run by Gena Lee Nolin, actress and model most famous for her appearance in Baywatch. After being diagnosed with Hashimoto’s and Hypothyroidism in 2009, Gena started sharing her experiences and building a community online as well as authoring a book:
Tired Thyroid was created by Barbara Lougheed, a thyroid patient who was left hypothyroid after radioactive iodine treatment for Graves’ hyperthyroidism. Her goal is to educate people about the fallacies that exist about thyroid treatments. Her book boasts great reviews;
Nadha at Thyroid Transitions was diagnosed with thyroid cancer and subsequently became hypothyroid after having her thyroid gland removed. Posts and information on this website promote a more mindful and conscious way of living, encouraging you to thrive with thyroid disease.
Thyroid UK, a charity, work on improving the diagnosis and treatment of thyroid disease and are often at the front of campaigns and studies.
Written by Rachel, The Invisible Hypothyroidism
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Rachel Hill is the highly ranked and award-winning thyroid patient advocate, writer, blogger, speaker and author behind The Invisible Hypothyroidism. Her thyroid advocacy work includes blogging, writing books, speaking on podcasts, being interviewed, writing for various websites and co-creating Thoughtful Thyroid courses. Rachel has worked with The National Academy of Hypothyroidism, BBC, The Mighty, Yahoo, MSN, ThyroidChange and more. She is well-recognised as a useful contributor to the thyroid community and has received eight 2019 WEGO Health Award Nominations.