My Personal Experiences

The Moment I Realised I had a Thyroid Problem

The Moment I Realised I had a Thyroid Problem

Do you remember the moment you realised or found out that you had a thyroid condition? I remember it well.

Rachel sat on a pier in Venice. The Invisible Hypothyroidism

I had been feeling ill for a long time. Over a period of five years, my health had steadily declined.

Although symptoms and signs of a thyroid condition were always kind of there, I can see that the real triggering of my Hashimoto’s and hypothyroidism were at sixteen years old.

Following swine flu at sixteen, I then ended up in hospital with another strain of flu which, this time, developed into pneumonia and put me on life support.

Between then, eventually coming out of hospital and receiving my diagnosis of autoimmune hypothyroidism, my health only gave more indications of a thyroid issue that were missed. I lost 80% of my hair by eighteen years old, I had unexplained muscle cramps and aches and pains in my legs, I always felt tired and went through bouts of feeling truly fatigued, until eventually, I was constantly heavily fatigued.

Migraines, constipation, leg cramps when trying to train for a 5k run, eczema, weight fluctuations and more.

I spent five years going back and forth to the GP surgery, complaining of all these mounting and worsening symptoms. I avoided googling anything because I knew that was rarely a good idea. However, a doctor eventually thought to take some blood and run tests checking for things such as low iron, glandular fever and a thyroid issue.

It was this particular GP’s last day at work before retiring and so I often wonder if I just caught her on a good day, where she was willing to go all out on the tests because she was retiring an hour later anyway. Had I seen someone else, would I have been waiting even longer for a diagnosis of my thyroid condition?

Rachel Very Ill From Levothyroxine


Anyway, after leaving the appointment, I decided to Google the phrase that summed up how I felt so well: “I am always tired and achey”.

Lo and behold, ‘underactive thyroid’ filled the search results. Clicking through to the NHS website page about it, I was taken aback. It listed everything I’d been complaining of for years. I then Googled ‘thyroid problem’ .

A light bulb switched on as I read other patient experiences of having this health condition. Comments explained how people were bed-bound with fatigue, had to give up their job due to ‘brain fog‘ (something I’d never heard of before) and experiencing leg cramps, migraines, acid reflux, fatigue, depression… my ‘separate issues’ were all there.

As a sudden wave of shock came over me, I felt stuck to the bed I was sitting on. My body froze like stone; everything suddenly pieced together. All the symptoms I had been going back to the doctor’s with, the aching legs and ill health, all the pieces of this jigsaw puzzle I never realised were connected, slotted together. It was a bizarre moment. An awakening if you will, five years in the making. 

And sure enough, the test results came back a few days later to confirm Hashimoto’s Thyroiditis, with an off the charts TPOAB result of “greater than 1300”, and ‘borderline’ hypothyroidism with a TSH of 9.

I couldn’t believe how easily I found the plausible answer for all my health complaints, yet doctors had kept missing it for years.

When I discovered my thyroid condition, my life changed forever. After all, I was diagnosed with a ‘chronic illness‘.

Do you remember the moment you realised you had a thyroid condition? Or received your diagnosis? Feel free to share in the comments.


See also:

Be Your Own Thyroid Advocate Book CoverMy book Be Your Own Thyroid Advocate: When You’re Sick and Tired of Being Sick and Tiredwhich builds on this article and covers how I went from being undiagnosed with thyroid disease, to being diagnosed but still unwell, and then finally taking control of my health again.

About Author

Rachel Hill is the highly ranked and multi-award winning thyroid patient advocate, writer, speaker and author behind The Invisible Hypothyroidism. Her thyroid advocacy work includes writing articles, authoring books, producing her Thyroid Family email newsletters and speaking on podcasts and at events about the many aspects thyroid disease affects and how to overcome these. She is well-recognised as a crucial and influential contributor to the thyroid community and has a large social media presence. Her bestselling books include "Be Your Own Thyroid Advocate" and "You, Me and Hypothyroidism".

1 Comment

  • Kari
    January 12, 2022 at 3:59 pm

    I had been sick for years with aches, fatigue, and so much more. I thought it was just who I was. Then, my husband, who had always suffered from balance issues and a few other things, was diagnosed with MS. it was then that I realized that my symptoms might actually be stemming from something and not just who I was. I went to a doctor and asked for full blood work, and he was the first to include TSH based on my symptoms. When I found out that there was actually a reason for everything, I was actually relieved.


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