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Originally published on 31st May 2017 Last updated on 29th October 2018
As someone who was diagnosed with a ‘borderline underactive thyroid’, I always wince at the phrase.
The photo on the left below is from 2015, when I was incredibly ill from ‘only borderline hypothyroidism’, as the doctor kept telling me. You can clearly see that I was not well. I was pale, had huge bags under my eyes and a puffy face.
The photo on the right is two years later, on thyroid hormone replacement.
They refused to treat me for my failing thyroid gland, being destroyed by my own immune system, and dismissed my concerns of feeling overwhelmingly fatigued, weak and unfit. At the end of the day on which this photo was taken, after walking around Edinburgh, I collapsed at the hotel, passing out from pure exhaustion. It took a good hour or so for me to come back around. It was very scary.
‘Borderline’ or ‘Subclinical’ hypothyroidism is a term I really don’t like. To me, your thyroid hormone levels are either optimal or not. If they’re not optimal they can cause symptoms and affect your quality of life, so ‘borderline’ levels are no excuse to not treat someone. They are no excuse to withhold crucial medication or imply someone is a hypochondriac. Every person is individual, so we should be treated as such and this includes those with ‘only borderline’ results who have mounting, debilitating symptoms.
I lost years of my life to thyroid symptoms ruling it, due to doctors dismissing me because they went on inaccurate testing and outdated, wide ranges, above my symptoms. Many patients lose many years. Until it was so late for me that the medication they did eventually give me made no difference whatsoever. My body was in too poor a state.
If your doctor has said you are borderline or subclinically hypothyroid and is withholding treatment, despite your quality of life suffering, then I strongly suggest you get another doctor’s opinion, and possibly another, until you’re taken seriously and treated. You should also have a retest of any borderline/subclinical TSH, Free T3 or Free T4 readings to see if they have gotten better or worse. They can occasionally get better, but for many, they get progressively worse. If you wish to order these yourself, please find a link for those in the UK here and a worldwide link here.
Optimal thyroid levels are often crucial when recovering your health from poor thyroid function. ‘In range’ in often not enough to remove symptoms. Please see more information on optimal thyroid levels here.
Have you been dismissed with ‘borderline’ hypothyroidism, yet feel very unwell?
You can click on the hyperlinks in the above post to learn more and see references to information given.
The bookBe Your Own Thyroid Advocate: When You’re Sick and Tired of Being Sick and Tired by thyroid patient Rachel, which covers how she got her health back after doctors told her she was ‘only borderline’ hypothyroid.
Rachel Hill is the highly ranked and multi-award winning thyroid patient advocate, writer, speaker and author behind The Invisible Hypothyroidism. Her thyroid advocacy work includes writing articles, authoring books, producing her Thyroid Family email newsletters and speaking on podcasts, as well as being a founding board member for the American College of Thyroidology. She is well-recognised as a crucial and influential contributor to the thyroid community and has a large social media presence. Her books include “Be Your Own Thyroid Advocate” and “You, Me and Hypothyroidism”.