Mental Health / My Personal Experiences

Thyroid Disease: Make It a Good Story

Thyroid Disease: Make It a Good Story

TW: mental health, suicidal thoughts

“You are going to carry your thyroid condition for the rest of your life, so you can either wallow in the weight of it or you can fight for your only life and make it a good story.”

I’m not sure when exactly my mindset clicked to this way of thinking, because it wasn’t always this way.

Rachel Thinking as She Looks Out to a Lake

My health had been gradually deteriorating over several years before I was diagnosed ‘by chance’ with a thyroid condition – by which time my life was in tatters. Hypothyroidism and Hashimoto’s wreaked their havoc on me and my life.

I was barely able to work – attending one day a week some weeks – and my husband had to help me get out of bed and use the toilet, shower, get dressed and even walk up and down the stairs at home.

Understandably, my mental health was also in a bad place. I reached a point where I just didn’t want to live anymore. The constant physical and mental pain felt like too much and at 21-years-old, I couldn’t bear the thought of my life now being this way forever. Especially since everyone else was telling me that ‘thyroid conditions are easy to treat’ and ‘not big deal’. I was told to just get on with it, despite really struggling to do basic tasks. I felt very alone. No one understood what it was like to be in this body that was failing me and stopping me from living a normal life of a twenty-something.

However, at some point, I discovered a small sliver of hope within me somewhere.

I realised it was there when I came across stories of other people who had overcome bad health with hypothyroidism by changing thyroid medication. I had never considered that the Levothyroxine may not be working for me until I read about other medication options and how other thyroid patients were advocating for themselves and actively participating in their own healthcare and treatment.

I started to read websites and books by thyroid patients, advocates, medical practitioners and more and realised that if others could recover, so could I. At some point, something changed in me and I started to fight for my life.

The depression didn’t lift overnight, it was much more of a gradual clearing over several months, but as I regained my health piece by piece and fought for my life, the hope and belief that I could really do this grew.

And the rest is history.

Rachel in Bruges

Four years on, I’m enjoying life to the full. No more daily symptoms or struggles, I am working and enjoying work, functioning much more like someone my age and I am glad I didn’t leave this world. In fact, as I type this, I am feeling the kicks of my unborn child inside of me.

Your quality of life is worth fighting for.

You can click on the hyperlinks in the above post to learn more and see references to information given.

Be Your Own Thyroid Advocate Book Cover

Find this article helpful? The book Be Your Own Thyroid Advocate: When You’re Sick and Tired of Being Sick and Tiredgoes in to more detail and discusses how thyroid patients can better manage their thyroid condition and thrive.

About Author

Rachel Hill is the highly ranked and multi-award winning thyroid patient advocate, writer, speaker and author behind The Invisible Hypothyroidism. Her thyroid advocacy work includes writing articles, authoring books, producing her Thyroid Family email newsletters and speaking on podcasts and at events about the many aspects thyroid disease affects and how to overcome these. She is well-recognised as a crucial and influential contributor to the thyroid community and has a large social media presence. Her bestselling books include "Be Your Own Thyroid Advocate" and "You, Me and Hypothyroidism".

1 Comment

  • Anita
    September 13, 2020 at 8:27 pm

    Rachel, you are so WONDERFUL to care for others and share about thyroid disease ! I am grateful to read your blogs and keep learning from others as well. IT IS TRUE different thyroid meds have different reactions to each of us. Where I buy my levothyroxine – one month they gave me Euthrox – made in Germany and I felt so bad that month. I even told my PCP doctor about it and he said DEMAND they get you the regular levothyroxine. So now that I’m back on that, I feel so much better again! I take it 1 hour before I eat any food or drink in the morning. I was told to take it in the morning, not night. I get awfully tired at night though, about 10 pm and must lie down. I have had this disease for about 5 years now. I turned 65 in May. I always wondered how it started: genetic ? and my PCP doctor said I could of not had enough iodine in my system all these years, which is true, I never cooked with alot of iodized salt before, now I do. Or it could of come from X ray machines (dentists’ offices) when they take xrays of your mouth and they put that CAPE over you … my dentist never had it pulled up
    to my neck area – so that could of been why too. I never knew that. I hope and pray it doesn’t get worse, I started on 25mcg and 5 years later, I’m up to 37.5 mcg (they perscribe 75mcg) and I must cut my pills in half. I have a pill cutter. Good investment. CVS has them. It’s something we all have to live with our whole lives. I don’t think I will ever be off of it – it didn’t sound that way from when I had my discussion with my PCP when I first was diagnosed. Anyway, congrats on your award ! Take a bow young lady ! VERY PROUD of you and thankful you are doing this newsletter, even once a month; I so look forward to it. God bless your caring heart.


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