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It’s a question that’s been asked many times:
What happens if you stop taking your thyroid medication?
For one reason or another, you might be wondering if you can get by without it. Perhaps you don’t feel any better on it, perhaps you feel worse or that it gives you some side effects. It could be expensive for you to maintain or you might not be keen on taking any pills for whatever reason.
You may even be wondering how long can I go without thyroid medication?
I’m often asked:
- What happens if I don’t take my thyroid medicine?
- Can you stop taking thyroid medication once you start?
However, it’s very important to be aware that failing to take your thyroid medication opens you up to many health risks. Having thyroid disease is serious and taking hormone replacement medication is a big deal.
As Adequate Levels of Thyroid Hormone Are Needed for Every Function of the Body, Not Having Enough Would Open You up To:
- Abnormal blood pressure
- An increased risk of heart disease
- An increased risk of infection
- Weight gain that is almost impossible, if not completely impossible, to shift
- Depression and anxiety
- Hair loss (on the head and eyebrows) and an itchy and sore scalp
- Infertility, miscarriage, stillbirth
- Irregular periods or periods that are too heavy or too light
- Extreme fatigue and an inability to handle exercise
- Muscle weakness
- Joint and muscle aches and pains throughout the body, though most commonly in the legs
- Numbness in limbs
- A long recovery period after exercise
- Recurrent low vitamin levels such as B12, D, Folate, Iron and Ferritin that can cause a whole load of symptoms in their own right
- Feeling cold a lot of the time, including cold hands and feet
- Brain function issues such as brain fog, memory issues, degeneration and confusion
- High cholesterol
- Acid reflux
And the most serious of all, myxedema coma, which, although uncommon, can be fatal. This is a loss of brain function as a result of longstanding, severely low level of thyroid hormones. It is considered a life-threatening complication of hypothyroidism that develops over quite a long amount of time.
At the end of the day, whatever your reason is for not wanting to take your thyroid medication anymore, don’t just stop it.
1. Talk to your doctor about trying another thyroid medication if you feel no better on it, have side effects, or take a look at my list of ideas for other reasons you might still be feeling unwell even when on thyroid medication. Even if you feel worse since starting the medication, never just stop taking it. Explore why you still feel unwell.
2. Talk to your doctor or insurance provider if applicable, about payment plans or sorting out something more affordable, if affordability is the issue. Some thyroid patients look in to self-sourcing their own thyroid medication, as this can be less expensive, but it is incredibly risky and not recommended. (Medications are always best prescribed and dosed by a medical professional.)
3. If you’re wanting to explore being able to live without thyroid medication and stabilising your condition through diet and lifestyle alone (which reportedly can be done in a very small amount of individuals but I must admit doesn’t seem overly common), consult someone like a functional doctor for example and be extremely cautious. Most of us end up needing thyroid hormone replacement for life, even after putting Hashimoto’s into remission.
4. Or learn to look at your thyroid medication as an essential part of living for you – just like food and water, instead of looking at it negatively. Read this.
Have you ever wondered what would happen if you stopped your meds? Let me know below.
You can click on the hyperlinks in the above post to learn more and see references to information given.
Learn more about how to make the most of your health with hypothyroidism. The book Be Your Own Thyroid Advocate: When You’re Sick and Tired of Being Sick and Tired builds on this article in detail and explains how to thrive with thyroid disease.
There is also the online thyroid course ‘Freedom From Thyroid Fatigue’, which walks you through how to overcome thyroid fatigue. You may benefit from this guidance if you still experience ongoing fatigue and low energy.
Rachel Hill is the highly ranked and award-winning thyroid patient advocate, writer, blogger, speaker and author behind The Invisible Hypothyroidism. She has two books: ‘Be Your Own Thyroid Advocate‘ and ‘You, Me and Hypothyroidism‘. Her thyroid advocacy work includes authoring books, writing articles, blogging and speaking on podcasts. Rachel has worked with The National Academy of Hypothyroidism, BBC, The Mighty, Yahoo, MSN, ThyroidChange and more. She is well-recognised as a useful contributor to the thyroid community and has received eight 2020 WEGO Health Award Nominations.