What Happens If You Stop Taking Your Thyroid Medication

It’s a question that’s been asked many times on my Facebook group:

What happens if you stop taking your thyroid medication?

For one reason or another, you might be wondering if you can get by without it. Perhaps you don’t feel any better on it, perhaps you feel worse or it gives you some side effects. It could be expensive for you to maintain or you might not be keen on taking any pills for whatever reason.

However, it’s very important to be aware that failing to take your thyroid medication opens you up to many health risks. As adequate levels of thyroid hormone are needed for every function of the body, not having enough (what would happen if you stopped your thyroid medication), would open you up to:

  • Abnormal blood pressure 
  • An increased risk of heart disease
  • An increased risk of infection
  • Weight gain that’s almost impossible, if not completely impossible, to shift
  • Depression and anxiety
  • Hair loss (on the head and eyebrows) and an itchy and sore scalp
  • Infertility, miscarriage, stillbirth
  • Irregular periods or periods that are too heavy or too light
  • Extreme fatigue and an inability to handle exercise
  • Muscle weakness
  • Joint and muscle aches and pains throughout the body, though most common in the legs
  • Numbness in limbs
  • A long recovery period after exercise
  • Recurrent low vitamin levels such as B12, D, Folate, Iron and Ferritin that can cause a whole load of symptoms in their own right
  • Feeling cold a lot of the time, including cold hands and feet
  • Brain function issues such as brain fog, memory issues, degeneration and confusion
  • High cholesterol
  • Constipation
  • Acid reflux

And the most serious of all, a myxedema coma, which, although uncommon, can be fatal. This is a loss of brain function as a result of longstanding, severely low level of thyroid hormones. It is considered a life-threatening complication of hypothyroidism that develops over quite a long amount of time.

At the end of the day, whatever your reason is for not wanting to take your thyroid medication anymore, don’t just stop it. Instead:

1. Talk to your doctor about trying another medicine if you feel no better on it, have side effects, or take a look at my list of ideas for other reasons you might still be feeling rubbish. Even if you feel worse since starting the medication.

2. Talk to your doctor or insurance provider if applicable, about payment plans or sorting out something more affordable, if affordability is the issue. Or look in to self sourcing your own medicine (not to be taken lightly, though), as this can be cheaper than you think. Just make sure to use legitimate sources.

3. If you’re wanting to explore being able to live without thyroid medication and stabilising your condition through diet and lifestyle alone (which reportedly can be done but I must admit doesn’t seem overly common), consult a functional doctor and be extremely cautious. Many actually end up needing thyroid hormone replacement for life.

4. Or learn to look at your thyroid medication as an essential part of living for you – just like food and water, instead of looking at it negatively. Read this.

You can click on the hyperlinks in the above post to learn more and see references to information give.

Written by Rachel, The Invisible Hypothyroidism

Rachel is a Thyroid Patient Advocate and Expert with Six 2018 WEGO Health Award Nominations. She is a highly ranked writer appearing in the Top Hypothyroidism Websites and Top Thyroid Websites 2018, and is a qualified Diet and Nutritional Advisor, also currently studying for relevant qualifications and certificates in Life Coaching, Motivational Speaking, Reflexology and more. She has worked with The National Academy of Hypothyroidism, The BBC, The Mighty, Dr. Hedberg, Thyroid UK and ThyroidChange, to name just a few. She is well recognised as a trusted and useful contributor to the thyroid community.

13 thoughts on “What Happens If You Stop Taking Your Thyroid Medication

  1. Hi I’m 29 year old and Im thyroid patient. recently I stop my thyroid med approx 1 month 13 days due to not available my med here. But problem is that this month my period not came. my previous period date is 23rd jan 2018. This month till now not come my period.is dat any worried to not taking med? Pl help. why my period not coming n when I expect my period pl suggest.

    1. Hi Shampa,

      As thyroid medication is crucial to every cell and function of the body, you cannot be without it. Many functions will begin shutting down such as your periods, so this is a big warning sign. Can you see another doctor/chemist/pharmacy to source your medication?

  2. I just got off the phone with a nurse for the physicians assistant I’ve been going to since last June.

    I had another blood test last Friday. She has decided that since my thyroid tests are within normal levels at 150 mcg of levothyroxine per day, I no longer need to take thyroid medication at all!

    I think that it is time to shop for a new doctor. I’m going to call the insurance company first to see if I can at least get a refill until I can see another doctor. My current prescription ran out this morning.

  3. Im 16 years old and I was just diagnosed with hypothyroidism. I started taking the meds about a month ago and iron along with it. in this time period i didnt get my period but once i finished both i wasnt on anything for about a week, and i got my period. before this the last time i had gotten my period was about two months ago.

  4. I seem to suffer with all those items which you listed above even whilst medicated on Levothyroxine… Double edged sword much! Just goes to show if one is only treated with T4 then a large portion of patients within the UK are just using up precious overworked/underpaid NHS resources with endless appointments and getting other ‘band aid’ drugs prescribed to them (probably to mess the patient up even more that they’ll require more appointments, eventually surgery, more expensive drugs vicious cycle) – When there is a dispute about the NHS NOT allowing T3 to be prescribed (because “it’s too expensive, not within the NHS budgets blah-blah-blah”, surely the NHS would SAVE on all those endless doctor’s appointments, hospital stays/surgeries, and additional prescriptions… Oh sorry I forgot, greed, greed, greed! – The big Pharmaceutical companies want to make their money in whichever possible, (keep everyone in sick mode and let money make the world go round) Big Pharma has held the NHS at ‘ransom’ for “expensive” T3 for years, only getting addressed in the House of Lords now in 2018!! Still all so very vague and unsatisfactory… Disappointing. ~Tired. How is it that combination T3 and T4 Liothyronine costs about 52p per box when purchasing it without a prescription in Europe? Why did the UK get such a bum deal? Sick and Tired of being the Thyroid hostage in a Body that will not function properly, depressedANDstressed.com

    1. Hi Jane – I have the exact same argument myself! If the pharmaceutical companies weren’t so greedy and warped then the NHS would stand to save money by having thyroid patients on T3 containing medicine because like you say, we wouldn’t need so many other medications, appointments etc. that being inadequately treated on T4 only meds does. I would also argue that pharmaceutical companies want us to stay unwell, hence the pushiness of T4 meds, so we have to use more and more of their medications. I echo everything you’re saying. It’s disgraceful. All the while more and more thyroid patients get more and more sick. But we’re told we’re adequately treated as we’re sent on our way with the hundredth prescription in hand!

    2. Well said. Fed up with the whole Endo lot, and their excuses. I cannot work in my condition, and I have side effects that nobody seems to put together. I feel nauseous, weak and foggy most of the time, plus skin allergies. The UK won’t allow NDT either.

      1. Hi Val, NDT is available for prescription in the UK on a named patient basis. The problem is that most doctors don’t know how to use it.

  5. Hi!
    Looking for some advice love.
    I’ve been diagnosed with hypothyroidism since I was 13 but have been in and off taken the meds since then. I now haven’t had my period for three months… you reckon if I start taking my meds properly I’ll go back to normal?

    Cheers love ❤️

    1. Hi Michi, Usually once your body needs thyroid hormone replacement, it needs it for life. Hypothyroidism can affect your periods hugely. Please get a FULL thyroid panel tested ASAP.

  6. Hello, I’ve been on a very low dose of levothyroxine for about 2 years…last week my hair fell out, yes, I now have a number hair cut after losing all of mmmy shoulder length curls…had bloods done and my levels are low so my dose has been upped..and have to go back in 3 months..my doctor is lovely but I really don’t understand why all my hair fell out, in a way it was good because I wouldn’t of been due too have my levels checked for a couple of months, so they obviously did a different test as not long had one…but why all of a sudden did it all fall out..doc just said, it can happen…but why.. I really a.m. confused…Sacha uk

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