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In July 2016, I completed the 5k Color Run course, raising money for Thyroid UK, a charity that campaigns for and provides information and support to those with thyroid disease and related disorders.
I wanted to help them in their mission to provide information and resources to promote effective diagnosis and appropriate treatment for people with thyroid disorders. As someone with hypothyroidism, it was really important to me.
The 5k went well and at a pub in the evening, while having a meal to celebrate my achievement (having hypothyroidism made the course difficult to complete), I visited the toilet. After coming out of the cubicle and washing my hands in the sink, I commented on a pair of amazing shoes a woman standing next to me was wearing. They were super high and bright pink and sparkly. She explained that she was here for a wedding and asked what I was here for. I replied that I had done the The Color Run that day, going on to explain what it was.
She asked if it was for a charity and I explained that regular entry isn’t, it’s just a 5k course, but there’s nothing stopping you from doing it for a charity, which is what I did. So she asked which charity I did it for, to which I replied “Thyroid UK,” waiting for her blank expression. Most people don’t even know what a thyroid gland is, so getting a blank or confused look back isn’t unusual.
Her face dropped.
She replied, “You’re kidding?!” and pointed to a scar on her neck. She had hyperthyroidism (overactive thyroid disease) and was having real trouble getting it properly medicated, so she was losing hair and struggling to put on any weight. She had been having a really distressing time with it and spilled her guts to me.
We had a good chat about it all (the trials and tribulations of thyroid disease) and she said it gave her goosebumps having met me that day. She couldn’t believe it.
She hadn’t spoken to anyone else about having hyperthyroidism before. She had always kept her diagnosis of this disease to herself because she felt that no one would understand. She hadn’t even told any close friends or family – yet she felt connected to this stranger she’d just met because they also lived with a thyroid problem.
The thing is, thyroid disease is extremely common.
- The World Health Organization estimates that 750 million people in the world have some form of thyroid disease
- Including at least 1 in 20 people in the UK say the BTF (though I believe it’s more common)
- And more than 12 percent of the U.S. population developing a thyroid condition during their lifetime, say the ATA
- Yet the ATA also say that as many as 60% are undiagnosed
Awareness and knowledge of thyroid disease is shockingly poor. It’s not an excuse for being overweight or underweight. It’s not an excuse for being lazy. And it’s definitely not easy to live with. We can struggle to get adequate testing and treatment. But we should talk about it.
So many people have it and don’t speak to others for fear of being ridiculed or misunderstood. Let’s change that.
You can click on the hyperlinks in the above post to learn more and see references to information given.
Have you talked to a stranger, only to discover you both have the same health condition?
Rachel Hill is the highly ranked and multi-award winning thyroid patient advocate, writer, speaker and author behind The Invisible Hypothyroidism. Her thyroid advocacy work includes authoring books, writing articles, blogging and speaking on podcasts, as well as being a board member for The American College of Thyroidology and The WEGO Health Patient Leader Advisory Board. Rachel has worked with The National Academy of Hypothyroidism, The BBC, The Mighty, Yahoo, MSN, ThyroidChange and many more. She is well-recognised as a useful contributor to the thyroid community and has received multiple awards and recognitions for her work and dedication. She has authored two books: ‘Be Your Own Thyroid Advocate‘ and ‘You, Me and Hypothyroidism‘. Rachel is British, but advocates for thyroid patients on a global scale.