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Q. Who are you?
A. Hi! I’m Rachel, a thyroid patient advocate, meaning that I live with hypothyroidism and Hashimoto’s and I share my stories, thoughts, resources etc. in the hopes of helping to empower and uplift other people with these health conditions who may be struggling. As well as raise awareness of thyroid conditions.
I am also a board member for the American College of Thyroidology (a 501(c)(3) nonprofit corporation whose focus is the training of physicians and health care practitioners on the best practices of thyroid care).
See my media kit here.
Q. Are you a doctor?
A. No, I am not a doctor or trained medical professional. I have qualifications and certificates in various subjects and topics, such as Diet and Nutrition and Life Coaching, which can be useful in my work as a thyroid patient advocate, but if you are planning to make any changes to your health regimen, I would always suggest working with a doctor and consulting them first. Doing anything mentioned on this site (or any website) without medical input and guidance can be dangerous.
Please see my disclaimer here.
As I’ve already explained, I am a thyroid patient advocate, advocating for better thyroid disease diagnosis, management and treatment.
Q. Do you give 1-on-1 coaching?
A. No. Although I have a life coaching qualification, I don’t utilise this in the form of coaching and certainly do not give medical advice or guidance. To find support as a thyroid patient, please see my various social media pages, online support group etc.
Q. Why did you set up this website?
A. I have learnt a lot on my own thyroid journey, through personal experience, books, research and studies, speaking to others in the industry, reading other websites and blogs and by listening to the thyroid patients in my thyroid patient community. Patients can often tell you more than anyone about what it’s like to live with a thyroid condition. I wanted to share all of this because I believe strongly that it can benefit others.
A huge catalyst to creating this website was also answering the questions I was seeing in my Facebook support group everyday. I created the group early in my thyroid diagnosis and answering the same types of questions over and over again soon became time consuming. In order to help as many people as possible, it was easier to write out my answers in one place (this website) and start using links to articles to help answer more questions. So it went from just a blog to a whole website.
I also hope to raise awareness of hypothyroidism, be a voice for the many thyroid patients worldwide who need to be heard and maybe even improve the diagnosis and management of hypothyroidism. So the website aims to spread awareness too.
Reading books, websites, studies, research and work by medial professionals and advocates whilst still unwell myself (hello thyroid fatigue and brain fog!), I oftentimes found it hard to absorb a lot of it and even understand some of the phrasing or detail, so I also wanted to make information on thyroid disease easier to grasp and use in your own thyroid health by simplifying it! I wanted to create easy to understand yet informative blogs, articles and more that sound as if they’re coming from a friend. Information on some websites can be written very scarily and negatively and can be overwhelming. I wanted to change this.
Q. How did you come up with the name ‘The Invisible Hypothyroidism’?
A. I wrote a poem before I started blogging, titled “The Invisible”. Hypothyroidism is an invisible illness in that it’s not always easy to see that someone has it just by looking at them. And so ‘The Invisible Hypothyroidism’ just made sense.
Q. Do you have a newsletter?
A. Yes! The Thyroid Family Newsletter delivers thyroid related news, blogs, interesting reads, discounts, giveaway competitions and more. Read more and sign up here.
Q. Do you have any books?
A. Yes! I wrote my first book in 2018; Be Your Own Thyroid Advocate: When You’re Sick and Tired of Being Sick and Tired. You can find it on Amazon.
I wrote my second book You, Me and Hypothyroidism: When Someone You Love Has Hypothyroidism, in 2019. It’s a resource for the loved ones of hypothyroid patients. You can find it on Amazon.
I have also contributed the forewords to these books:
Q. Do you have a course I can take?
A. Due to a lot of my followers requesting that information found on my website and social media be condensed in to a ‘course’ or ‘programme’ that they can take to empower themselves in their own thyroid journey, learn the essential information to living well with thyroid disease and put things in to practise, I am hoping to put together a course in the future.
Q. How do I contact you?
A. Please see my contact page here.
Q. Why do you share such personal experiences on here?
A. I originally started blogging a few months before it went live. It was an outlet for me – somewhere to express my feelings, vent my frustrations and deal with what I was going through. I wasn’t sure if I would ever publish it and show it to anyone else, but in the end I did because:
- I felt that sharing my experiences would help others going through the same thing.
- I felt others would realise that they were not alone in what they experience with hypothyroidism and it would provide comfort.
- I thought ‘I don’t have to keep quiet about what I’ve gone through. If I want change for future thyroid patients, I have to speak up.’
- I wanted others to know that they shouldn’t feel ashamed .
- I wanted to empower others to learn to advocate for their thyroid health as this is what has gotten me better.
Find out more in my book, Be Your Own Thyroid Advocate: When You’re Sick and Tired of Being Sick and Tired.