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Going by the endocrinologist’s advice in his latest letter, I am reducing my daily NDT dosage. I am currently on 2 grains a day, taking 1 in the morning and 1 mid-afternoon. I will cut it down to 1.75 grains a day, with 1 still taken in the morning and the rest mid-afternoon.
I’m not convinced it’s going to help my on-going symptom that is left – fatigue – but we’ll see.
Unlike many of the doctors I see, I am willing to consider other ideas and give things a try… So we’ll see.
My latest thyroid blood results read as optimal (well, to me. The endocrinologist didn’t like how low my TSH was, but admitted my Free T3 and Free T4 were good), so I’m not sure a lowered dose is going to do any good. If not actually bring back some of my thyroid symptoms.
He’s also written another letter to my GP, and now I have to book in to see them to discuss it. Apparently, the receptionist couldn’t tell me what this new letter says, due to patient confidentiality, and her not being able to access my letter. So, I don’t know if I have to see my GP next week based on the last letter he sent that also got sent to me, or a new one I haven’t seen yet.
We’ll see I guess. After being on this new dosage, the endocrinologist has suggested doing another full thyroid panel to check where my levels are, in a few weeks, which is fine if I feel well, but if it makes me feel ill again, I will be returning to my 2 grains a day.
How do you manage expressing your concerns with medical professionals to find a common ground?
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Rachel Hill is the highly ranked and multi-award winning thyroid patient advocate, writer, speaker and author behind The Invisible Hypothyroidism. Her thyroid advocacy work includes authoring books, writing articles, blogging and speaking on podcasts, as well as being a board member for The American College of Thyroidology and The WEGO Health Patient Leader Advisory Board. Rachel has worked with The National Academy of Hypothyroidism, The BBC, The Mighty, Yahoo, MSN, ThyroidChange and many more. She is well-recognised as a useful contributor to the thyroid community and has received multiple awards and recognitions for her work and dedication. She has authored two books: ‘Be Your Own Thyroid Advocate‘ and ‘You, Me and Hypothyroidism‘. Rachel is British, but advocates for thyroid patients on a global scale.