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He said that my TSH was a little too low, and although both my Free T3 and Free T4 still read really well, he advised that I reduced my NDT from 2 tablets a day to 1.75. This was said a few weeks ago in his letter.
What I find funny, though, is that he says with my TSH reading, I am technically now overactive, yet someone else with an overactive thyroid and that TSH likely wouldn’t be given treatment, due to the lack of care for those who only fall ‘slightly’ in or out the range. They’d be told to go away and see if it corrects itself. That a test would be done in another six months to see how it’s doing. By which time, their hyperthyroidism is much worse and they feel much worse. How ironic is that? Here I am, falling slightly out my hypo range, and he declares me on too much of a medication he doesn’t endorse. Funny that. Ironic.
When I was ‘only borderline‘ hypothyroid, they denied treatment.
However, with moving house and everything, I didn’t feel it was a particularly great time to trial his experiment, since I was convinced it’d make me more tired again, so I put it off until last week, when things had calmed down.
And I went in today to see my GP and explained this to him. He was fine with it. In fact, he was a little baffled. He felt my TSH was fine, and that all my blood levels read really well.
He said that coupled with the fact that I look and feel really well, he is happy for me.
And I’m happy that he’s happy that I’m happy! I’m doing well. With my high cortisol, I do still have fatigue, but it doesn’t affect me really, now, and it’s manageable. I feel good lately. I’m still convinced that my thyroid levels are good, so my on-going fatigue is either adrenal related and/or Hashimoto’s related, of which going gluten-free is supposed to help. Although I’m seeing no results so far.
But, my GP and I agreed I may as well trial the endocrinologist’s suggestion and see what happens. So, I’m booked in for a blood test to test my levels again, in five weeks time. I’m seeing the endocrinologist at the end of next week. Which will be fun…
Do you get frustrated with test ranges?
Rachel Hill is the highly ranked and multi-award winning thyroid patient advocate, writer, speaker and author behind The Invisible Hypothyroidism. Her thyroid advocacy work includes writing articles, authoring books, producing her Thyroid Family email newsletters and speaking on podcasts, as well as being a founding board member for the American College of Thyroidology. She is well-recognised as a crucial and influential contributor to the thyroid community and has a large social media presence. Her books include “Be Your Own Thyroid Advocate” and “You, Me and Hypothyroidism”.