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Following on from my blog post 11 days ago about lowering my NDT from 2 tablets a day to 1.75, I thought an update would be a good idea.
Well, unfortunately, some symptoms I got rid of when I last raised to 2 tablets a day, are coming back. My scalp is itchy and sore again, and I’m feeling more tired. If I carry on feeling more unwell, I won’t be staying with the lower dose, even though it is only 4 or 5 more weeks until the next blood test. I felt well on 2 grains a day and my GP and I were happy with my blood results when I was on that dosage, so I won’t subject myself to feeling rubbish again just for the endocrinologist’s sake.
My endocrinologist advised that my TSH was a little too low, and although both my Free T3 and Free T4 still read really well, he advised that I reduced my NDT from 2 tablets a day to 1.75. Someone in my Facebook group said that she read that endocrinologists generally ask you to drop the dosage by a quarter when you reach optimal. God knows why. No logic in that.
My GP was fine with me on 2 grains, though, so I know if I do decide to go back to it of my own accord, he won’t be too fussed.
I’ll keep you posted!
Have you found endocrinologists to be much more help than your GP? Let me know below.
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Rachel Hill is the highly ranked and multi-award winning thyroid patient advocate, writer, speaker and author behind The Invisible Hypothyroidism. Her thyroid advocacy work includes authoring books, writing articles, blogging and speaking on podcasts, as well as being a board member for The American College of Thyroidology and The WEGO Health Patient Leader Advisory Board. Rachel has worked with The National Academy of Hypothyroidism, The BBC, The Mighty, Yahoo, MSN, ThyroidChange and many more. She is well-recognised as a useful contributor to the thyroid community and has received multiple awards and recognitions for her work and dedication. She has authored two books: ‘Be Your Own Thyroid Advocate‘ and ‘You, Me and Hypothyroidism‘. Rachel is British, but advocates for thyroid patients on a global scale.