Informational Posts / News

International Thyroid Awareness Week 2021

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International Thyroid Awareness Week begins on May 25th 2021 and continues through to May 31st. 

Rachel holding a butterfly

The worldwide week-long event is a good opportunity for raising awareness of thyroid conditions, both how it affects those of us with them, but also the signs and symptoms to get more people diagnosed sooner. In this way, we can avoid so many people living poor quality lives with thyroid conditions such as hypothyroidism and Hashimoto’s.

The Stats

And of those diagnosed, a lot still struggle daily. 

Could you or a your friend or family member have a thyroid condition?

Rachel Flare Up Asleep

Symptoms of Hypothyroidism Include:

And symptoms of hyperthyroidism include:

  • Increased sweating
  • Anxiety
  • Oversensitivity to heat
  • Palpitations
  • Diarrhoea
  • Increased appetite
  • Weight loss
  • Dry, thin skin
  • Hair loss
  • Shakiness/trembling
  • Fatigue
  • Change in sex drive
  • Larger eyes
  • Mood changes
  • Nervousness
  • Insomnia
  • Dry or gritty eyes
  • Double vision
  • Weak, less define muscles
  • Aches and pains
  • Changes to menstrual cycle
  • Infertility or problems conceiving
  • Osteoporosis

And with Hashimoto’s Disease, you can even experience a mixture of these symptoms.

If you believe you may have a thyroid issue, please make an appointment with your doctor and have them test a full thyroid panel to evaluate your thyroid status. Your doctor may just run the TSH test, but it is important to be aware that this isn’t totally accurate on its own and the other components of the panel also need checking, especially if TSH comes back ‘normal’.

Where Can I Order Testing From?

If your doctor won’t test you for a thyroid condition but you believe you may have one, or if they won’t run all the tests you need, you can explore ordering your own from online lab services.

LetGetChecked Thyroid Test

Medichecks is a popular place in the UK, where you can order the all important thyroid function test to check for autoimmune hypothyroidism (Hashimoto’s).

LetsGetChecked cover most countries, and offer the thyroid function testHashimoto’s testing and many more, all from the comfort of your own home.

Having a Thyroid Condition

Once on treatment, obtaining optimal thyroid hormone levels instead of just being ‘in range’ is important, as well as checking thyroid antibodies to check if the condition is autoimmune. It is for around 90% of us and can affect your treatment to get you back to feeling well again.

It is also important to note that having Hashimoto’s can cause results to move up and down, as if you’re changing from hypo to hyper, or back and fourth between normal and abnormal. You may also be told you are only borderline hypothyroid, and it is important to know what this entails for you as well.

If you’ve just been diagnosed, check out these common FAQ’s and answers.

For those of us already diagnosed, we can gain awareness this week about how to check our thyroid glands regularly for any abnormalities, what vitamins may help us and what tests we need to ensure our doctors are doing on us. We should also be aware of what results we are looking for.

The Big Thyroid Jigsaw Puzzle 

Be Your Own Thyroid Advocate Book Cover

I always describe treating and managing hypothyroidism and Hashimoto’s as being like a giant jigsaw puzzle. Each person may have different pieces to slot in to place before they can obtain good or even great health again with these conditions, but we have to work to find out what these are for each of us and share our own experiences. We all need to embrace being our own thyroid health advocates and understanding our health condition, and this awareness month is a great opportunity for that. You can find my book on how I got my thyroid health back on track on Amazon, here.

I also wrote a book with my husband around how hypothyroidism can affect relationships. Find ‘You, Me and Hypothyroidism’ on Amazon here.

Raising Awareness 

An important part of awareness events is using them to raise awareness of the condition/s to those who don’t have them. Please see a list of articles you may wish to share with those around you, below.

For many thyroid patients, they are also still living with lingering symptoms, despite being on treatment for their condition (I’m mainly speaking to hypothyroidism patients here) so delving deeper in to why is something you can do this month. You can live a good quality life with hypothyroidism.

We can also share any resources we’ve found to be helpful, for example, I would suggest all hypothyroid patients to check out those listed here.

Are you raising awareness of thyroid disease this week?

See also:

A Letter: To Family and Friends of those suffering with Graves Disease

An Open Letter to Friends, Family, Work Colleagues and Doctors of Those with an Underactive Thyroid/Hypothyroidism.

You can click on the hyperlinks in the above post to learn more and see references to information given.

About Author

Rachel Hill is the highly ranked and multi-award winning thyroid patient advocate, writer, speaker and author behind The Invisible Hypothyroidism. Her thyroid advocacy work includes writing articles, authoring books, producing her Thyroid Family email newsletters and speaking on podcasts and at events about the many aspects thyroid disease affects and how to overcome these. She is well-recognised as a crucial and influential contributor to the thyroid community and has a large social media presence. Her bestselling books include "Be Your Own Thyroid Advocate" and "You, Me and Hypothyroidism".

1 Comment

  • Elaine hollins
    May 26, 2021 at 12:23 pm

    It’s a very good article but what if your g.p does not listen to you? Your t.s.h is in range (they say). My latest private was 4.22, n.h.s over 2 nearly 3. My antibodies are raised, both sorts. I have hashimoto’s but not according to my gp notes. Endo agrees with gp, No treatment. Another Endo,No treatment. I haven’t met either of these Endos and have loads of symptoms for many years. I can’t afford to go private for treatment. Only just afford blood test from my carers allowance. Symptoms blamed on stress,depression, menopause but just not even given a trial of meds.


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