In July last year, I completed the 5k Color Run course, raising money for Thyroid UK, a charity that campaigns for and provides information and support to those with thyroid disease and related disorders. I wanted to help them in their mission to provide information and resources to promote effective diagnosis and appropriate treatment for people with thyroid disorders. As someone with hypothyroidism, it was really important to me.
The 5k went well and at a pub in the evening, while having a drink to celebrate my achievement (having hypothyroidism made the course difficult to complete), I visited the toilet. After coming out of the cubicle and washing my hands in the sink, I commented on the pair of amazing shoes the woman standing next to me was wearing. They were mega high and bright pink and sparkly. She explained that she was here for a wedding and asked what I was here for. I replied that I had done the The Color Run that day, going on to explain what it was.
She asked if it was for a charity and I explained that regular entry isn’t, it’s just a 5k course, but there’s nothing stopping you from doing it for a charity, which is what I did. So she asked which charity I did it for, to which I replied “Thyroid UK,” waiting for her blank expression. Most people don’t even know what a thyroid gland is, so getting a blank or confused look back isn’t unusual.
Her face dropped.
She replied, “You’re kidding?!” and pointed to a scar on her neck. She had hyperthyroidism (overactive thyroid disease) and was having real trouble getting it properly medicated, so she was losing hair and struggling to put on any weight. She had been having a really distressing time with it and spilled her guts to me.
We had a good chat about it all (the trials and tribulations of thyroid disease) and she said it gave her goosebumps having met me that day. She couldn’t believe it.
She hadn’t spoken to anyone else about having hyperthyroidism before. Ever. She had always kept her diagnosis of this disease to herself because she felt that no one would understand. Not even anyone she personally knew – yet she felt connected to this stranger she’d just met because they also lived with a thyroid problem. She was shocked to discover another patient.
But the thing is, thyroid disease is extremely common.
- The World Health Organization estimates that 750 million people in the world have some form of thyroid disease
- Including at least 1 in 20 people in the UK say the BTF (though I believe it’s more common)
- And more than 12 percent of the U.S. population developing a thyroid condition during their lifetime, say the ATA
- Yet the ATA also say that as many as 60% are undiagnosed
Awareness and knowledge of thyroid disease is shockingly poor. It’s not an excuse for being overweight or underweight. It’s not an excuse for being lazy. And it’s definitely not easy to live with. We struggle to get adequate testing and treatment. But we should talk about it.
So many people have it and don’t speak to others for fear of being ridiculed or misunderstood.
This post was originally written for The Mighty.
Written by Rachel, The Invisible Hypothyroidism
Rachel is a Thyroid Patient Advocate and Expert with Six 2018 WEGO Health Award Nominations. She is a highly ranked writer appearing in the Top Hypothyroidism Websites and Top Thyroid Websites 2018, and is a qualified Diet and Nutritional Advisor, also currently studying for relevant qualifications and certificates in Life Coaching, Motivational Speaking, Reflexology and more. She has worked with The National Academy of Hypothyroidism, The BBC, The Mighty, Dr. Hedberg, Thyroid UK and ThyroidChange, to name just a few. She is well recognised as a trusted and useful contributor to the thyroid community.