Our ‘Invisible Illness’ Isn’t Really Invisible

Hypothyroidism, also called an underactive thyroid and thyroid disease, is an invisible illness. This means that the effect it has on someone living with it isn’t always obvious or visible, but it doesn’t make it any less impacting on the person’s life. 

Around 750 million people in the world live with some form of thyroid disease, yet many keep their health condition concealed, afraid that friends, family and co-workers just won’t understand this often debilitating condition. 

Let’s try to understand. 

Here are real people, holding real statements, who have really been affected by thyroid disease and want people to start realising. 

Our ‘invisible illness’ isn’t really invisible. Look closer. 

To view the separate photos used in the above video, you may scroll through them below.










16904886_925842970886484_5598554649656124795_o“30 years diagnosed. Had it since 1974 What would my life be like without hypothyroidism?”








Part of the I’m Tired project. Sent to me by the hypothyroid patient photographed.



17264550_10210998528531459_3523181248145608755_n (1)











There are many people out there, people in your life, living with hypothyroidism or other forms of thyroid disease. They may well be struggling; their quality of life affected, from weight gain to brain function, mental health issues, extreme fatigue and pain, just to name a few. See a full list of symptoms here.

If you look closely, our invisible illness isn’t really invisible.

You can click on the hyperlinks in the above post to learn more and see references to information given but more information can be found at:

An Open Letter to Friends, Family, Work Colleagues and Doctors of Those with an Underactive Thyroid/Hypothyroidism.

An Open Letter: “Dear Doctor, It’s Not All in My Head.”

Written by Rachel, The Invisible Hypothyroidism

Rachel is a Thyroid Patient Advocate and Expert with Six WEGO Award Nominations, a highly ranked writer appearing in the Top Hypothyroidism Websites and Top Thyroid Websites 2018. Currently studying to become a Life Coach, she has worked with The National Academy of Hypothyroidism, The BBC, The Mighty, Dr. Hedberg, Thyroid UK and ThyroidChange, to name just a few. She is well recognised as a trusted and useful contributor to the thyroid community and has relevant qualifications and certificates in Diet and Nutrition, Reflexology, Motivational Speaking and Positive Thinking.

3 thoughts on “Our ‘Invisible Illness’ Isn’t Really Invisible

  1. You are an amazing writer!! Thank you for being the voice for what I’m thinking and feeling! ?

  2. Hello, I have suffered with an under active thyroid or over 20 years ….I can relate to everything I read on this web site … I am tired of being tired ..and I have told Dr’s over the years I don’t feel well… .all I get is ‘ well your within the range ‘ so you must feel ok …..But in reality I don’t ..I take my Thyroxine and can’t but can’t get through a day with out 3 + hours sleep ..The sleep just takes over … I am so sick of feeling exhausted, Confused,Foggy headed, ..And no one truly understands ..unless they suffer ..it is truly an invisible illness …I have never been the same since my thyroid took over my life ..Please keep up the good work …Sincerely Angela

    1. Sorry to hear this Angela. As you may already know, it is so important to get our thyroid levels to optimal and not just in range. Thyroxine, T4-0only medicine, doesn’t work for everyone. It sounds like you could benefit from a thyroid medication containing T3.

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